Last night mom got a phone call at 11pm that Brian had pulled his feeding tube out of his nose for the fifth time. This didn't make us happy at all. He has hand restraints and a sitter, so how could this be? So mom actually drove back to the hospital very mad. We had a bad feeling yesterday that the lady watching him wasn't capable, we should of just followed our guts and asked for someone else, lesson learned. Today he had his swallow evaluation and passed with flying colors and they took his tube out at last. He was able to eat a tuna sandwich at lunch and a cheese burger, cottage cheese and milk for dinner. He is doing awesome. He is also able to swallow pills whole. He is very with it at times but gets easily frustrated he learns that he can't get out of bed to use the restroom. This is just the worst, I feel so bad for him because it just must be terrible to not be able to do what you want to do, especially your business. It's hard to be stuck in bed all day when you are used to doing otherwise. He is also seeing bugs, moths, bees and horse flies every where, we tell him that we understand that he sees them but they are not real and it's just part of his brain rebooting and not to be frightened. Tomorrow he has a cardiac cath/angiogram scheduled and this will tell us if he has and blockages or damage to his heart. They hope to move him to St. Joseph's in Tacoma on Monday for rehabilitation. We are still hanging in there and appreciate the tremendous support we have.
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